Tag Archives: stroke

Just when you thought it couldn’t get worse

It does…

I don’t know what to say. I’m sitting in a lovely house and a lovely place, and I’m still told that it was just one of those things.

Yes, I’ve had another stroke. A bleed. My brain started to bleed and it wound up with me trying to crawl up the stairs. It’s hard to fathom.

On March 7th of this year I turned 50.

It’s a wonderful landmark and also one that makes me stop and wonder. I wonder how I’ve passed through so many years. Back when all of this started… when I was 36.

This story unfolded on April 11th.

I was on the computer. I remember thinking “Gee, how hard is it to click where I mean to click.” I was fighting where I was clicking. It’s hard to describe this to you – imagine trying to click but not succeeding. I mean we do it all the time. Then I realized “Uh oh, I better get upstairs and try to lie down. I might be having a stroke.”

Now I know what you’re thinking. Surely this girl isn’t going to go upstairs and lie down — she knows what’s happening. Well I knew what was happening but in that moment your limbs feel like concrete and your ability to make decisions is severely impaired.

I was trying to make my way upstairs and I tripped on the barrier which keeps the dogs down. Again. And again. I could NOT get my right leg up over the dog wall. By now I wasn’t moving and I put my hands down and then I lifted my leg. It hurt because my leg wasn’t cooperating and the matching arm was also not participating. I finally got over the barricade. And now that I’d managed, I thought “OK. There we go. Now just get into bed.”

It’s ridiculous. I feel like it’s a joke how slow I was going.

I would have asked for someone to come help me but my husband was working and the boys were in Ottawa. I was alone. No one else around. In my mind, I felt like I just had to rest. Everything would be fine and I would recover.

This wasn’t quite like other experiences. It was tricky. I knew that. But I was still stubborn. As soon as I got into bed, I rested. And before I knew what was what, I had a wake-up shake. It was my husband.

I wanted to say I was fine just a little groggy but the words were not there. I felt lost. I felt exhausted. I told him I was just tired. I went back to sleep.

The next morning I woke up and I was trying to get going. I was sitting on the edge of the bed and my husband was there and I asked him if he was going to work. He said “Yes. But I just want to make sure you can drink the water.” i made a dramatic sigh and I tried to sip the water. I missed. “Fuck”. I sat up a little and I tried again. I missed again. “Shit.” I tried to clean up my face and I said “Are you happy?” He left the room.

In this time I rested and tried to think of what to do. The routine has me head down to the computer and spend time with a friend online. I’ll call that friend. I opened my phone which was much harder to do than usual – I video called – that was never done. I tried to think of a way to hang up but I couldn’t. I heard the friend on the other end pick it up and after a while they hung up. In the next step I don’t know if I called or if they called but I said “I’m having a stroke.”

That friend likely saved my life. They talked to me for a little while and then they hung up making me promise to go to the hospital.

I went down to the kitchen and my husband and I sat at the table. I remember the conversation clearly with him are we going to go?

Yes.

It’s now the next day, April 12, so any immediacy is over. By all rights I should be dead.

We spent the morning in the Smiths Falls Hospital where a CT scan revealed a brain bleed. From then we were just waiting for transport to Brockville Hospital. I slept. Kirk tried to as well.

By the nighttime, Kirk was sent home. He had called the boys again, I spoke to them to try to reassure them. And Kirk went home for a sleep. I was eventually taken to the Hospital in Brockville. End April 12. It’s now April 13, a Saturday. It’s never particularly productive to be in hospital over the weekend but I figured I was better off there than back at home.

Eventually the boys were home from their trip and I was settled in the Brockville Hospital where they came to see me. I’m sure they didn’t know what to expect. It was probably a horrific thing to have survived my first stroke as children – with three months away from home – and then to come back and not know what was waiting for them. It was likely a huge relief when they saw me up and talking to them (albeit slower than I usually do).

I managed a call to tell my friend I was okay. They were pretty freaked out and had a lot of questions – more than I could answer. I still imagine hearing me say “I’m having a stroke.” That phrase was all I could say. I think that is what I said, it’s what I meant to say. They made a few jokes to lighten the mood now that I was in the Hospital.

But I had one question: Why?

I had gone 13.5 years without another – I felt quite good. And now it was April 2024 and I was back in the hospital and I didn’t feel so good.

Now, with the benefit of retrospect, I can look back and say I had a lot of pressure. My mother died a year and a bit before my first stroke. This time my father was ill and declining. Dementia and Alzheimer’s had him in their grips. I was his primary caregiver. And now I couldn’t drive.

It was lucky he wasn’t able to conceive of time. He thought I’d just been there. And when I went back to see him (a month later), he still thought I’d just been. I never told him I had a stroke. It would have done no good; he was dying.

That was a hard few months. I gave my brother the reigns for Dad’s care until early June when I was able to take it back. I’m glad things worked out that way… because by July 15th he was gone.

So here I am

It’s hard to know where to start this blog post. It’s been a long time since I’ve posted and there are many reasons for my absence.  Let me fill you in on where I have been.

I’ve worked very hard to continue my stroke recovery. I do brain exercises in the form of number games to pump some cerebral iron and word games to help rebuild my vocabulary. I’ve prioritized parts of my life that need direct attention for all of us: our health, our happiness, our loved ones. Most importantly, I’ve had an important 3-year conversation with someone I’ve never even seen…

I remember a time when I was blogging quite regularly but I didn’t really know if that was what I am meant to do or where I am meant to go. Seeking meaning in life, seeking purpose, is nothing new… it’s endemic of the human condition. But the writing was (and still is) harder than it was in my pre-stroke years. Now I have to really engage and the result is that my brain gets tired and it takes a lot of my steam away from the other things that are still hard to keep up with (housekeeping, gardening, parenting, caring for an aged parent, marriage, even taking care of our dog).

With that cost, I had to take some time to say to the Lord: ‘is this where you need me?’ I have dreams and I have wishes and I did once want to be a novelist (two fiction and one non-fiction are in development) but I didn’t want to forsake all the rest – or His will – for the sole purpose of chasing a dream.

So I stopped blogging and charged up my life of faith. In the past few years, my seizures stabilized and I eventually trusted my Neurologists enough to agree that driving would help me. A couple of years ago I passed my driving test (feeling like a teenager all over again) and within one month I went to our parish and offered my services to go to the homes of those who are suffering with illness, disability, surgical recovery, or who are dying. Someday I will begin to share with you how hugely transformative that has been for me.

More recently, I was asked to serve on our parish Council so that also takes up some time; one night a week I am working with some friends to learn about Saint Faustina and about Divine Mercy, and another night a week I go in the wee hours of the morning to spend some time alone in silent, selfless, Adoration.

With those very meaningful hours feeding my soul, the homilies started to speak louder and louder to me:

Do not be afraid. Just walk and trust that the path will be made straight if the intention is pure. Just tell your story.

So here I am.

I know there are millions of people who are struggling with brain injuries, stroke recovery, parenting, and all the other things I struggle with too. I also know that the internet has a wealth of kind and loving and giving people but I have also seen a dark virtual forest filled with monsters and evil empowered by its anonymity. It is my intent to light my light and try to brighten as much of the space around me as I can. I will be using blogs, tweets, instagrams, and even YouTube *gasp* to reach out and share. And yes, someday I still do want to be officially published but for right now, this is the path I want to be on. Lots ahead… Brace yourself!

There is nothing special about me… or maybe I should have said there is everything special about me but there is no more special than the ‘everything’ that is special in you.

It’s good to be back.

Be well,

Jen