My Stroke

So I told you that I would take a moment to tell you about how I fared in the stroke world. What follows is a short bit from information that they shared with me and then a long summary that had been documented on a form by one of my rehabilitation doctors.

The survival rates cited in my Dec 1 post are not bad but what I have been told is that the survival rates are attributed mostly to the Ischemic strokes (the ones that involve “only” a clot). Sometimes, if treated fast enough, a drug can be given to dissolve the clot – that is a very good thing.

Interestingly, I was not in the 80% who have that kind of stroke… I was in the 20% who have a hemorrhage stroke. The survival rates for that type of stroke are very low. This is part of the reason that I feel SO fortunate. I have been given a second chance at life. …Sighing and staring at the screen as I take a moment to absorb that again…

I will, in the near future, tell you about the actual beginning of my stroke and paint you a picture to understand what that was like (home alone with my three little boys at that time). For now, I will share with you a copy of the medical description of my illness [my comments are offered in square parentheses throughout the medical summary below]. The doctors’ part of the story begins after my husband found me non-responsive, unconscious and then having a seizure. He called 9-1-1 on the early evening of September 7, 2010. Firefighters and Paramedics arrived and the medical system kicked in to save my life..

If you can’t cope with the medical text that is coming next, scroll to the bottom where you see the text in bold 😉 .

Here we go:

“HISTORY OF PRESENT ILLNESS

“The patient was taken to the Montfort Hospital where she had a CT scan that diagnosed her left temporal intracranial hemorrhage. She was also noted to have a seizure [this was a “grand mal seizure” and was the third I experienced – the one and only “extreme” seizure I had in the presence of the medical professionals] and was treated with Dilantin and Ativan. She was then transferred to the Ottawa Civic Hospital under the care of Neurosurgery. The patient does not recall any descriptions of her seizure. On [the early morning of] September 8, 2010, she had a CT angiogram which showed a left temporal intracranial hemorrhage of 36 x 55 mm associated with vasogenic adema, partial left supraseller cistern and left lateral vetricle effacement, as well as a 2 mm left to right subfalcine shift. Her left posterior cerebral artery was noted to be hypoplastic. The vetebral arteries, right posterior cerebral artery (PCA) and anterior cerebral artery (ACA) were patent. There was also an incident of aneurysm noted involving the opthalmic segment of the right internal carotid artery measuring 1.7 x 1.7 x 3 mm. The left transverse and sigmoid sinuses were hypoplastic. A limited examination of the left internal carotid artery cerebral angiogram was performed and showed no arteriovenous malformation, no arteriovenous (AV) fistula, aneurysm, or vessel irregularities. The patient was then taken for a left craniotomy and hematoma evacuation [I was unconscious by that time and my husband gave consent in early morning and I had surgery starting at 11:36 AM]. Intra-operatively, there was some suspicion of a venous sinus thrombosis. Subsequent MRI and magnectic resonance venography (MRV) on September 9, 2010, documented absent filling of the left transverse and sigmoid sinuses.

My CT scan on October 25, 2010
“Postoperatively, the patient was sent to the Intensive Care Unit, was sedated and ventilated. She was also started on intravenous (IV) heparin for treatment of her venous sinus thrombosis. September 10, 2010, Doppler ultrasounds of the legs showed superficial and deep venous thrombosis of the left leg, which was not occlusive. Thrombosis was involved and advised on anticoagulation which was eventually switched to oral Coumadin for long term management. It was noted in her discharge summary from the Neurosurgical service that the hypercoagulable workup by thrombosis was negative. Howerver, a follow-up has been arranged with them [that was an appointment with my hero, Dr. Sinclair, on October 25 – I will go back to them again sometime between March and June 2011. He teaches at UOttawa and here is his bio and a photo about halfway down this linked page].
“During her hospital stay, Jennifer also experienced visual hallucinations involving seeing insects and dots or spots in her visual fields as well as abnormal colours or shadows, which were considered to be seizures occuring while on Dilantin. For this reason, the patient was switched to Keppra and has a followup arranged with Dr. Sharma in three months’ time with MRI of the brain [appointment is December 20 and here is an interesting interview and picture of my doctor from Oct 29, 2010].



The Left Side of a Brain

 “The patient’s overall diagnosis was left temporal intracranial hemorrhage secondary to venous sinus thrombosis, for which the patient was considered at higher risk given her age [36] and use of oral contraceptives [yep, the birth control pill; the estrogen one… be cautious ladies].

“The patient denies having had recent dental work prior to her stroke. She also denies any recent illness. However, she did mention that four months preceding her stroke she developed an incessant headache for which she took Motrin as needed and was scheduled to see her Family Physician on September 9, 2010.”

CHEAT NOTES: I had a hemorrhage stroke in my brain. I had brain surgery (yes, they opened my head and did incredible things to my brain). They found a clot in my left leg. And I had visual hallucinations which were due to the damage to my brain – the hallucinations have subsided since late September. 

I know that was a pretty long and meaty piece of information but I offer it so that you now know (medically about my case) about as much as I know. Well… except what it is like to actually live through this. But over the course of time, perhaps you will see that part too…

See you Dec 3 when I share some information about when you need to get yourself to a doctor as quickly as possible.

A card to me from my eldest son

Facts about strokes in Canada

If you had asked me about strokes a couple months ago I would have likely been fairly obvious in terms of how little I know about strokes and our precious brain. I would have told you that strokes are a blood clot that paralyzes senior citizens. If I handed in that quiz I would have failed.
Let me share a bit of information…
…by the way, tomorrow I will share where I fit in to this statistical picture (hint: I did not die)…

Types
  • About 80% of strokes are called “ischemic” which is caused by the interruption of blood flow to the brain due to a blood clot.
  • About 20% of strokes are called “hemorrhagic” which are situations of uncontrolled bleeding in the brain
Deaths
  • Stroke is the third leading cause of death in Canada. Six percent of all deaths in Canada are due to stroke.
  • Each year, nearly 14,000 Canadians die from stroke.
  • Each year, more women than men die from stroke.
Prevalence
  • There are over 50,000 strokes in Canada each year. That’s one stroke every 10 minutes.
  • For every 100,000 Canadian children under the age of 19, there are 6.7 strokes.
  • About 300,000 Canadians are living with the effects of stroke.2
  • After age 55, the risk of stroke doubles every 10 years.
  • A stroke survivor has a 20% chance of having another stroke within 2 years.
Effects
Of every 100 people who have a stroke:
  • 15 die (15%)
  • 10 recover completely (10%)
  • 25 recover with a minor impairment or disability (25%)
  • 40 are left with a moderate to severe impairment (40%)
  • 10 are so severely disabled they require long-term care (10%)
For every minute delay in treating a stroke, the average patient loses 1.9 million brain cells, 13.8 billion synapses, and 12 km of axonal fibres.
Each hour in which treatment does not occur, the brain loses as many neurons as it does in almost 3.6 years of normal aging.
Costs
  • Stroke costs the Canadian economy $3.6 billion a year in physician services, hospital costs, lost wages, and decreased productivity (2000 statistic).
  • Canadians spend a total of 3 million days in hospital because of stroke.
So this is a serious situation and the reality is that in the stroke survivor community I have met a lot of people who were closer to my age than you might want to hear (I’m not too shy to tell you I’m 36)… so please take your fingers out of your ears and stop pretending I’m not talking to you. I am looking you right in the eye and telling you the truth. When you started reading this blog it meant that you may encounter some painful truths, but they might help you to avoid encountering an even more painful life-changing experience.
Besides, the worst possible thing you can do is to remain unaware of the situation.
See you tomorrow when I share some of the technical jargon that applies to what happened to my brain…

Welcome to my journey

Tuesday, September 7, 2010 was the first day of school for my boys AND it was the day I had a major stroke and several seizures followed by brain surgery. Needless to say, statistically I am very lucky to be alive.
Since then, I spent two and a half months in hospitals and I will begin additional rehabilitation at the Acquired Brain Injury facility here in Ottawa, ON Canada.
I am still me in many ways but I am no longer the same as I was before… I look forward to sharing this with you as my journey needs not to be in silence or isolation.
Come with me!

Jen

P.S. I am looking forward to sharing this journey with you as I recover from a stroke. I hope that this will be a useful way to share information with:
– those I love
– those who have something in common with me
– those who want me to answer my darn phone more
– those who are someone (or love someone) who has suffered from a stroke

Buckle up! My first post will be tomorrow…