Category Archives: loss

Just when you thought it couldn’t get worse

It does…

I don’t know what to say. I’m sitting in a lovely house and a lovely place, and I’m still told that it was just one of those things.

Yes, I’ve had another stroke. A bleed. My brain started to bleed and it wound up with me trying to crawl up the stairs. It’s hard to fathom.

On March 7th of this year I turned 50.

It’s a wonderful landmark and also one that makes me stop and wonder. I wonder how I’ve passed through so many years. Back when all of this started… when I was 36.

This story unfolded on April 11th.

I was on the computer. I remember thinking “Gee, how hard is it to click where I mean to click.” I was fighting where I was clicking. It’s hard to describe this to you – imagine trying to click but not succeeding. I mean we do it all the time. Then I realized “Uh oh, I better get upstairs and try to lie down. I might be having a stroke.”

Now I know what you’re thinking. Surely this girl isn’t going to go upstairs and lie down — she knows what’s happening. Well I knew what was happening but in that moment your limbs feel like concrete and your ability to make decisions is severely impaired.

I was trying to make my way upstairs and I tripped on the barrier which keeps the dogs down. Again. And again. I could NOT get my right leg up over the dog wall. By now I wasn’t moving and I put my hands down and then I lifted my leg. It hurt because my leg wasn’t cooperating and the matching arm was also not participating. I finally got over the barricade. And now that I’d managed, I thought “OK. There we go. Now just get into bed.”

It’s ridiculous. I feel like it’s a joke how slow I was going.

I would have asked for someone to come help me but my husband was working and the boys were in Ottawa. I was alone. No one else around. In my mind, I felt like I just had to rest. Everything would be fine and I would recover.

This wasn’t quite like other experiences. It was tricky. I knew that. But I was still stubborn. As soon as I got into bed, I rested. And before I knew what was what, I had a wake-up shake. It was my husband.

I wanted to say I was fine just a little groggy but the words were not there. I felt lost. I felt exhausted. I told him I was just tired. I went back to sleep.

The next morning I woke up and I was trying to get going. I was sitting on the edge of the bed and my husband was there and I asked him if he was going to work. He said “Yes. But I just want to make sure you can drink the water.” i made a dramatic sigh and I tried to sip the water. I missed. “Fuck”. I sat up a little and I tried again. I missed again. “Shit.” I tried to clean up my face and I said “Are you happy?” He left the room.

In this time I rested and tried to think of what to do. The routine has me head down to the computer and spend time with a friend online. I’ll call that friend. I opened my phone which was much harder to do than usual – I video called – that was never done. I tried to think of a way to hang up but I couldn’t. I heard the friend on the other end pick it up and after a while they hung up. In the next step I don’t know if I called or if they called but I said “I’m having a stroke.”

That friend likely saved my life. They talked to me for a little while and then they hung up making me promise to go to the hospital.

I went down to the kitchen and my husband and I sat at the table. I remember the conversation clearly with him are we going to go?

Yes.

It’s now the next day, April 12, so any immediacy is over. By all rights I should be dead.

We spent the morning in the Smiths Falls Hospital where a CT scan revealed a brain bleed. From then we were just waiting for transport to Brockville Hospital. I slept. Kirk tried to as well.

By the nighttime, Kirk was sent home. He had called the boys again, I spoke to them to try to reassure them. And Kirk went home for a sleep. I was eventually taken to the Hospital in Brockville. End April 12. It’s now April 13, a Saturday. It’s never particularly productive to be in hospital over the weekend but I figured I was better off there than back at home.

Eventually the boys were home from their trip and I was settled in the Brockville Hospital where they came to see me. I’m sure they didn’t know what to expect. It was probably a horrific thing to have survived my first stroke as children – with three months away from home – and then to come back and not know what was waiting for them. It was likely a huge relief when they saw me up and talking to them (albeit slower than I usually do).

I managed a call to tell my friend I was okay. They were pretty freaked out and had a lot of questions – more than I could answer. I still imagine hearing me say “I’m having a stroke.” That phrase was all I could say. I think that is what I said, it’s what I meant to say. They made a few jokes to lighten the mood now that I was in the Hospital.

But I had one question: Why?

I had gone 13.5 years without another – I felt quite good. And now it was April 2024 and I was back in the hospital and I didn’t feel so good.

Now, with the benefit of retrospect, I can look back and say I had a lot of pressure. My mother died a year and a bit before my first stroke. This time my father was ill and declining. Dementia and Alzheimer’s had him in their grips. I was his primary caregiver. And now I couldn’t drive.

It was lucky he wasn’t able to conceive of time. He thought I’d just been there. And when I went back to see him (a month later), he still thought I’d just been. I never told him I had a stroke. It would have done no good; he was dying.

That was a hard few months. I gave my brother the reigns for Dad’s care until early June when I was able to take it back. I’m glad things worked out that way… because by July 15th he was gone.

Rehearsal

So tonight we will be rehearsing the big event.

Who stands where? Who comes in first? Who is speaking? Who sits with whom?

So much to think about and so much to remember. So far, it seems we have easy parts. My husband and our sons are the ushers at the wedding and I am reading at the ceremony… after that we are off the hook 🙂

I will be reading the poem “Footsteps” which was one of our Mother’s favourites.

Footprints in the Sand

 

foter-footprintsOne night I dreamed I was walking along the beach with the Lord. Many scenes from my life flashed across the sky.

In each scene I noticed footprints in the sand. Sometimes there were two sets of footprints, other times there was one only.
This bothered me because I noticed that during the low periods of my life, when I was suffering from anguish, sorrow or defeat, I could see only one set of footprints, so I said to the Lord,
“You promised me Lord, that if I followed you, you would walk with me always. But I have noticed that during the most trying periods of my life there has only been one set of footprints in the sand. Why, when I needed you most, have you not been there for me?”
The Lord replied, “The times when you have seen only one set of footprints, my child, is when I carried you.”
~ Mary Stevenson, 1936
What I hope that my brother and his bride realize is that the best rehearsal is the one we never have – the rehearsal of a terrible argument. The rehearsal of one of them being unemployed. The rehearsal of disagreeing over how to discipline children. The rehearsal of supporting a friend or family member whose needs exceed their reserve of strength, money or time.
These are the true challenges of a marriage.
We are fortunate to have a Faith that reminds us that the Lord will never leave us – His absence is only because we have left Him. Marriages are somewhat more fragile than the love of the Lord. We need to continually reaffirm our love for a spouse.
It is important to feel love often with a spouse – and our spouse needs that too… the Lord doesn’t mind if the talk with Him is quiet… the Lord will still be there if we are distracted by moving to a new house or if we are busy on a trip. A spouse may be more affected!
What we need to know going into a marriage is that sometimes as we mentally replay those life images there will be only one set of footprints in the sand. Only a naive couple would think they will always walk side by side.
The first years of our lives there are many times when we walk alone with our Faith. And as time moves on, many people walk alongside us for a moment or two as we move through the journey of life. But there are times when we are on our own and we have to be strong enough to survive through those times.
The decision to marry is a tremendous and very meaningful decision. That person will walk along with us very often in our life and they will always have a key spot in our memories and our life story. But in addition to married spouses there are other very special and important people.
Our parents, our children, close family, dear friends, a special teacher, a Faith leader, a caring neighbour, an amazing person who we find in an unusual place… each of those people are important and some of them will walk with us for a long time and others for just a brief moment.
But ultimately, our footprints through life are never totally alone. And for those of you whose life I walk through, know that my prints might not appear by your side as you go – but in my heart, I walk only a few paces behind.
Be well.

Jen

Knowing, Assuming, Believing

Our minds operate in a way that makes us think we know more than we do…

There is very little we KNOW for certain. Knowledge, in the context of what I am writing, is the sum of what is known; the body of truth, information, and principles acquired by humankind. What we can know with certainty is a relatively short list – despite the generations of people who have been studying and observing and amassing knowledge to an ever-growing compendium of human knowledge. We can KNOW, for example, that two plus two equals four. We can KNOW that gravity on Earth pulls objects toward the surface of the planet (and holds us all here).

The list of things we BELIEVE is a variable that depends entirely on your experiences, your faith, your friend group, your interests. I BELIEVE, for example, in a benevolent God who is omniscient but who is not necessarily intervening in the human experience of life. I do not KNOW that to be true … but I BELIEVE it. I also believe that my family and friends care about heart and stroke awareness. I cannot truly know that with certainty because humans are ever-evolving, ever-changing and each is facing their own experiences from moment to moment. But I believe it because they care for someone (maybe several people) who has raised that issue to the forefront of their mind for a period of time.

Everything else in our mind is an ASSUMPTION. I ASSUME that the sun will rise tomorrow. It may not… and I cannot know the future with any certainty so I assume things will happen in a way I can predict. I ASSUME that I will have tomorrow to accomplish some things I cannot complete today. I ASSUME that people I have watched and spoken to over the years will behave in a certain, predictable way. For example, I assume that my Father will continue to be irritated by an old, tattered Canadian flag… my assumption might be wrong! He may at some point forgive those who let a flag hang in a sad state or he may re-prioritize his interests and care less about flags … but I doubt it. Regardless of whether or not he changes his mind on that issue, I am ASSUMING he will continue to care about flags… I cannot KNOW it. He is a person whose feelings on issues are his and he is free to change his mind at any moment.

Why am I talking so much about this? Good question…
Lori Derbyshire 1970-2011This week I spent a lot of time considering a sudden and tragic loss of a family friend’s young, vibrant, active wife. She died suddenly and without warning last Sunday at age 41. On that Father’s Day, my friend and his two young sons were forever changed by an event that they could not have known was coming… nor did she for that matter.

Since that day, many people in their lives have had to reconsider the things that they thought they knew – what they had assumed – and what they believed. I reevaluated all of those things too.

~~~~~

I KNOW we will each end this journey of life in a way and at a time that we cannot predict. I KNOW that there are some things I would be devastated to fail to have done.

I ASSUME that my life can bring value to this planet and to others. I ASSUME that where I invest energy and time, I will be able to improve the life of someone out there; even if only in a tiny way, even if for only one person, even if just with a timely word, or with a hug or a warm smile.

I BELIEVE that a life well-lived is one step on a longer journey that extends far beyond this world. I BELIEVE that the people and experiences I have encountered were meant to be in my life with a reason.

Based on those three principles (of Knowledge, Assumption and Belief), I will live the rest of my days no matter how long or short so that I open my eyes each day as a happy surprise that I have another, fresh opportunity

  • to do the things I KNOW I want to do…
  • to accomplish something that day, no matter how small, which I ASSUME will bring value to others… and
  • to quietly and humbly pay attention to the people and experiences I BELIEVE I was meant to see and meet.
Imagine if we all paid attention to the life of those around us.

Jason, if you are reading this, thank you for sharing your heart-wrenching experience with others. You are loved and supported as Lori journeys on to the next destination on her path. You and your wife were a blessing to all of us around you and your life will continue to bless many even though some days may be more challenging for you in the coming time.

Be well,

Jen